Viewing services for children and youth with special health care needs through a community lens.
نویسندگان
چکیده
Children and youth with disabilities and special health care needs (CYSHCN) represent 13% to 15% of the US population. Their concerns are physical, intellectual, emotional, and social. Frequently, these children and youth contend with multiple, compounded problems. Although the medical, educational, and social systems address the concerns of CYSHCN as high priorities, CYSHCN from traditionally underserved groups continue to face significant barriers to community inclusion. They often do not enjoy the fruits of the new types of health, educational, and social services afforded to other CYSHCN. In this supplement to Pediatrics, we present a compilation of articles from researchers, clinicians, policy makers, medical educators, community-based organizations, and parents. Collectively, these authors ask the question, “How can we break through the persistent barriers that keep CYSHCN from underserved groups from benefiting from community inclusion and community-based services?”
منابع مشابه
Beyond the medical home: Special Care Family Academy for children and youth.
Children and youth with special health care needs require more health care and related services and consequently incur more costs than other individuals. Implementation of the "medical home" concept has benefitted children with special needs, resulting in fewer unmet medical needs and more consistent health care delivery. As advances in health care have enabled an increasingly higher percentage...
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BACKGROUND Understanding the needs of families of children and youth with cerebral palsy (CP) is important for family-centred services. The aims of this study were to identify: (1) differences in the number and types of family needs expressed by parents based on the age and gross motor function level of their children with CP; (2) the most frequent family needs; and (3) needs that differ on gro...
متن کاملA family-centered, community-based system of services for children and youth with special health care needs.
OBJECTIVE To present a conceptual definition of a family-centered system of services for children and youth with special health care needs (CYSHCN). Previous work by the Maternal and Child Health Bureau to define CYSHCN has had widespread program effects. This article similarly seeks to provide a definition of a system of services. DESIGN Comprehensive literature review of systems of services...
متن کاملSpecial considerations for the health supervision of children and youth in foster care.
Over 76,000 children and youth are in foster care in Canada, and their numbers are increasing annually [1]. Children and youth in foster care have higher than average medical, emotional, developmental and educational needs [2]. These special needs are often chronic, under-recognized and neglected. There are many barriers to health care including lack of or inadequate medical records, lack of co...
متن کاملPatient- and Family-Centered Care Coordination: A Framework for Integrating Care for Children and Youth Across Multiple Systems
Understanding a care coordination framework, its functions, and its effects on children and families is critical for patients and families themselves, as well as for pediatricians, pediatric medical subspecialists/ surgical specialists, and anyone providing services to children and families. Care coordination is an essential element of a transformed American health care delivery system that emp...
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ورودعنوان ژورنال:
- Pediatrics
دوره 126 Suppl 3 شماره
صفحات -
تاریخ انتشار 2010